+ What is Parkinson's?
Parkinson's is a progressive neurological condition. This means that it causes problems in the brain and gets worse over time.
+ What is World Parkinson's Day?
World Parkinson’s Day is 11 April. It was the birthday of James Parkinson, most famous for publishing ‘An Essay on the Shaking Palsy’ in 1817. The publication established Parkinson’s as an internationally recognised medical condition.
This provides the perfect opportunity for the international Parkinson’s community – including people affected, healthcare professionals and Parkinson’s organisations around the world – to join together to raise awareness about the condition.
On 11 April 2018 we are asking everyone, no matter where they are around the world, to unite and raise awareness and understanding of Parkinson’s on a bigger scale than ever before.
+ What is the aim of the #UniteForParkinsons campaign?
#UniteForParkinsons is a global campaign that aims to raise awareness and understanding of Parkinson’s and grow an active global Parkinson’s community.
Last year, people from 90 countries used the #UniteForParkinsons hashtag, and in 2018 we want to make an even bigger noise. With a bigger and more active community, we can encourage a bigger focus on Parkinson’s and the need for more collaborative research around the world.
So help us on 11 April 2018 – World Parkinson's Day – to show the world what living with Parkinson's truly means.
+ Who is behind #UniteForParkinsons?
Parkinson’s UK and the European Parkinson’s Disease Association (EPDA) have been working together to develop the #UniteForParkinsons campaign.
They have also teamed up with Parkinson's organisations in Africa, Australia, India and the US, including the Michael J Fox Foundation and the World Parkinson Coalition to help support the campaign.
You will notice that the guide and visuals are not a part of the Parkinson’s UK or EPDA brand identities. This is deliberate: #UniteForParkinsons is for everyone affected by Parkinson’s around the world.
+ Will there be international partnerships in the future?
We hope so. This campaign is the first stage towards bringing the global Parkinson’s community together. We will use what we have learned from this first campaign to look at ways we can continue to work together for future World Parkinson’s Days. We will also consider other opportunities that may arise.
+ How do I share my World Parkinson's Day plans with you?
You can send your plans to firstname.lastname@example.org. This email address has been set up specifically for this campaign and the EPDA will monitor it on behalf of the team at Parkinson’s UK as well. Your data will not be shared, but we might put you in touch with other people within the EPDA and Parkinson’s UK where appropriate.
+ I don’t use social media. What else can I do?
We understand that not everyone is on social media. We choose this as our main way to communicate because it reaches people internationally very quickly, easily and cheaply. But there are many other simple offline ways to support the campaign. For example:
- Taking part in an event to raise awareness
- Fundraising for your local organisation using the
#UniteForParkinsons campaign materials
- Writing an article for a local or national magazine or contacting your local or national newspaper
- Using the printable image to create badges, stickers or other merchandise and use them at events or add them to your own materials
- Putting a poster in your window
+ Who participated in the making of the film?
Thank you so much to everyone who submitted their stories. You can still share your Parkinson’s story on social media, using the hashtag #UniteForParkinsons.
In order to make the video as impactful as possible, we had to limit its length. Whilst we would have loved to include everybody, we were overwhelmed with submissions.
Australia: Stephen, Karen, Parky.
Austria: Gerald, Ulrike.
Brazil: Abel, Odilon.
Czech Republic: Irena.
Malta: Andrew, Rita.
Norway: Tommy, Morten, Anders.
South Africa: Johann.
United Kingdom: Andy, Frazer, Shamsa, Ryan, Emma, John and Anne, Richard, Wendy, Jason, Julie, Paul, Richard, Kay, Stuart, Shelly, Diane, Heidi, Harold, Martyn, John, Caz, Louisa, Sharon, Kate. USA: Alejandra, Lou, Kathleen, Nan, Laura.
Also thanks to the organizations below for their support with the campaign:
Affinity Formation, European Parkinson Therapy Centre (EuPaTh), Federación Española de Párkinson, Instituto de Neurologia de Curitiba, Kathleen Kelley Reardon: The Blog, Malta Parkinson's Disease Association (MPDA), Medtronic, Muhammad Ali Parkinson's Center and Movement Disorders Clinic, My Positive Parkinality, Parkins(on)line, Parkinson's Disease and Movement Disorder Society, Parkinson's Nepal, Parkinson's UK, Parkinsonsamtökin á Íslandi, Pedaling for Parkinson's, Společnost PARKINSON, z. s, The Parky Park Runner, Tikvah4Parkinson.